As Roald Dahl's Marvellous Children's Charity seeks to expand its remit to provide support to any child with significant unmet needs, it has asked for the wider sector's feedback on its proposals.
The charity was established a year after the late author's death to support children with blood and brain illnesses. But 21 years later its leaders seek to expand its influence wider. CEO Richard Piper says:
"Roald Dahl's amazing life was, also, blighted by tragedy, especially brain and blood problems for himself and his family. However we don't believe that Roald would have wanted us to be limited by his own biography, but rather be true to the values that shine through in his stories: that all children matter.
"Of course, we can't help everyone, but we can start from a place where in principle we will help anyone, rather than exclude certain children because they have the 'wrong' medical condition," he continues.
The charity plans to circle its services around five main activities: research, influence, specialist nursing, family grants and project grants. The five-year strategy runs from June 2013 to March 2017.
After eight months of internal and external discussions the charity is undertaking one final consultation, open to anyone, the charity says, including parents, children, young people, social care professional and other charities.
People wishing to participate have until 22 May to share their views on the proposals which will prioritise "the underdog". Children with serious long-term health problems and are also being "particularly let down by the health system", are faced with complex needs, are without a diagnosis, or are in care or in poverty will be first in line for support.